About

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“Because I can’t seem to escape it. It’s a way for me to address and counter my questions….” -Junot Diaz. 

Updated 3/9/20167:Life before my diagnoses of two chronic illnesses was lovely, it was happy. I helped my  (Ex husband)  husband with screen printing and graphics, and had my own projects that were building toward a business surrounding brewing Kombucha. I enjoyed several hobbies. I enjoyed activities that ranged from baking bread, and cooking, to jewelry making to crocheting. I also was an avid gardener.  I enjoyed spending time with my loved ones. Then I got sick and things got a little crazy. Life will get back to a new form of normal I know. For now I’m trying to figure out what that is.  For now, I’m trying to piece back together who Nicole is. That can be hard to do when you’ve gone through something traumatic such as the experiences that transpire from events some chronic illnesses present to you.

In November 2013 I was diagnosed with Antiphospholipid Syndrome, an autoimmune blood clotting disorder, and in March 2014 I was diagnosed with Systemic Lupus Erythematosus. Lupus, is another autoimmune condition where your body mistakenly attacks itself. My body is confused and instead of attacking and fighting off viruses, and other illnesses, it’s fighting a war against itself, on two fronts. At least that’s how I’ve come to look at it, I’m a little bit of a WWII/history buff, so I sometimes make dorky history related analogies. Welcome to my journey through this crazy part of life.

I’m almost three years into my journey with Lupus and APS at this point. I’ve come along ways since those first initial days. I can’t say that it is any easier, I think battling chronic conditions will always be a grab bag of various obstacles and frustrations. However, I’ve have learned to deal with it better. It is hard to put into words how different life is for me than it was at the beginning of this journey. As I write, I hope it comes across.

Dealing with the miscarriage of our child was something I never suspected to be the beginning of a journey like this. Unfortunately when lost our baby on May 29, 2013 at 10 weeks, instead of being the end of a tragic event, it was just the beginning. It is funny how things can happen like that when you aren’t expecting them.

In February 2016 I made one of the hardest decision of my life and ended my marriage. The details of the reasons I chose to do this were numerous, but sometimes after so much happens, two people that once were together  can no longer continue existing together.

Life is funny in the way when you close one door, another one tends to open. Here’s a short story for you. Over a decade ago I met this guy, I found him highly attractive, incredibly likeable and he had a sense of humor that kept me laughing. It was a fairly instant crush. I never said anything to him back then. We stayed good friends through the years. Just so happens he had recently become single as well. Even better, feelings were mutual. You know where this story is heading, so I’ll just skip the details and end this with the rest is history. Life is good right now, there are promises of better tomorrows, and I’m glad to be back in my hometown. It turned out that everything  my heart and soul has been searching for, are right where I started.

If you would like, you can connect with me on my Blog Fan Page on Facebook Click HERE.

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30 thoughts on “About

  1. Those are all life changing events. I like your positivity when you say life will get back to a new form of normal. I’ve never heard of AS, but I do know people with Lupus who are controlling their disease well, and leading productive lives. I hope you will find how to live life to the fullest with these diagnoses. I’m retired, but I still remember the grief I felt when I had two miscarriages, one at 10 weeks, another at 4-1/2 months. But the problem was uncovered and I had four beautiful children, and now grandchildren. I, too, love WWII and history — my favorite reading is historical fiction. My husband is English (we live in the US) and we’ve visited some of the most interesting WWII historical sites in Britain, where of course the history is more “real”. Hope you’re feeling good today — and don’t forget to write!

    Liked by 2 people

    1. Val, it has definitely been a roller coaster ride this past year. APS’s major concern is that it is a blood clotting disorder. Then majority of my ‘issues’ as it were are being caused by Lupus. Though APS can cause some of the same symptoms of Lupus. I am confident once we get an effective treatment plan in place life will get easier again. My Rheumy wants to start me on a new med next month, which I’m sure will inspire more blog posts! I spoke with an OB/GYN last month and he is optimistic if we want to try again in the future he can help us be successful. We will have to see where we are in a year, as my Hematologist said definitely not for this year, and with the new med I”m starting pregnancy isn’t recommended, so I’ll have to talk to my Rheumy about how that will need to be addressed should my husband and I decide to try again. I love historical fiction. Are you a fan of Diana Gabaldon by chance? She is one of my favorite authors! Happy Sunday! Thank you for the well wishes! I hope you have a lovely day as well.

      Liked by 1 person

      1. Love your page and your slide show. I also have 2 autoimmune diseases, diabetes and hypothyroidism. I have a friend who has lupus and I know it’s more problematic than some. I’m so glad I connected with you.

        Liked by 1 person

      2. Meredith,
        Thank you so much! I look forward to reading more about you, I’m glad we have made a connection too. Please stay in touch, I’m glad you found me on facebook, please drop a note either here, facebook, or email anytime and I’ll be in touch as soon as I can. 🙂

        Liked by 1 person

  2. I hope it all turns around for you and everything goes back to normal. Sorry to hear about your illness and your miscarriage. It must be really hard. Wish you all the luck and happiness in the world. Hope the way you love life, life loves you back. You have a great family and a great husband. Stay blessed and live each day like you never lived before.

    Greetings

    Eat All Fresh 🙂

    Liked by 1 person

  3. hey there nicole! keep on fighting, you’re a brave brave person and I admire your strength to battle these diseases – they may have your body, but they definitely don’t have your soul! by the way, my birthday is december 27th ^^

    Liked by 1 person

    1. Miki,
      Thank you! That is very true, I may have them but they don’t have ME! I know I will come out of this a stronger person. It has led me to meeting some truly amazing people. People I would have never met otherwise. Prior to getting ‘sick’ I was rather introverted and kept to myself. This has given me the strength and ability to talk to people I wouldn’t have otherwise had the courage to talk to. I will have do my best to remember your birthday. OHHHH perhaps we should add birthdays to the Covey Calender! 🙂

      Liked by 1 person

  4. I am happy to know you better Nicole:). I wish you a happier and healthier life ahead, You have the positivity and strength to get by and make the most of everything. Yes, all of that shows in just these few lines that you wrote:). You are truly inspirational!

    Liked by 1 person

    1. Cathy, Thank you, I’m sorry for your loss as well. Writing has always been therapeutic for me as well. That was one of many reasons I started my blog when I did. I knew it would help me make sense to this new crazy life I was thrown into when I was handed the diagnoses that I was dealt.

      Liked by 2 people

  5. Hello Nicole,

    You are going through a tough time and I am happy that writing is helping you cope among other things. I would pray for healing and peace. I wish you very best.

    Have a great week ahead.

    Anand 🙂

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  6. I can so relate to you Nicole, I too have a disease (not chronic though) but can result on something worse for me if I don’t manage it well and I lost my very first baby (a boy at 7 months due to cord accident – still can’t help myself crying over that). You inspire people with how you are able to share to the world what you are going through. You really are such a brave and happy person. I hope and pray that you will continue your way to good health. I so long for the time where God’s promise that no one will say, “I am sick” will come soon. Keep the faith!

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    1. Shine, So sorry to hear you were dealt something that is devastating and potentially life threatening by the sounds of it. Also sorry for the loss of your baby boy. The loss of a child at any stage of pregnancy is not an easy thing to deal with, I can only imagine it gets worse though later in pregnancy. I’m so sorry.

      Liked by 1 person

      1. No, my disease is not life threatening, and it is all right. I’ve learned to accept things as they come. Yes, losing a baby will always be something we can.never forget. I hope you will have a child of your own Nicole. 🙂

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  7. I love the hedgehog. New pet? Daring hair color! It looks terrific! I’m sorry I didn’t answer your email. Things get away from me without notice!?! Much love and prayers.

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    1. Meredith,
      I’ve had Max, the hedgehog, for a little over 3 years, He’s a little old man now. I’m enjoying the haircut and colors. I’ve been several vibrant colors since May but decided to finally update the picture on my about page. No worries on the email, but I’m glad you got it, I was starting to wonder. Glad it did get to you! Much love and hugs. Catch up with you soon!

      Liked by 1 person

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