in Lupus, zero to hero 381 Words

In the Lupie-Loop

This week I’ve read over some great information about Lupus, Lupus awareness and other topics relating to common threads of interests. I thought I would share them with you all here. Please take a moment and check them out!

This blog is also doing a Lupus Awareness Campaign for the month of May. There are several blog, myself included that are doing various things to raise awareness during Lupus Awareness Month, check out this blog to see what they are doing!
The benefits and risks of long-term Prednisone therapy. I know from my short-term experience a couple of weeks ago, I felt the best I had felt in months on Prednisone, but through conversations with my PCP, it was clear that LT Prednisone was something we want to avoid as long as we can. 
Cartoon image of Christine Miserandino holding a spoon
Spoon Theory by Christine Miserandino. A great explanation of what it is like to live with  Lupus using spoons to illustrate the choices and fatigue we are faced with daily. I have shared this post with friends and family to give them a way to relate to what it is like having to live with Lupus. It has opened up a lot of conversations and helped open lines of communications. 
Stress Reduction
Stress reduction tips and why it’s important to people with Lupus. Stress can be overwhelming at times, not only to the newly diagnosed. Stress plays a role in flares as well. Getting stress levels under control can lead to feeling better overall. 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Once a month I will try to post a roundup of information that I stumble across that I think will be of interest to my readers. If you find things that you think others would find beneficial or entertaining and would like to submit it for consideration for June’s round-up please leave a comment with the information, send me a message on Facebook, or

11 thoughts on “In the Lupie-Loop”

    1. Thanks! It was the assignment for today’s blogging 101 challenge but I will continue to do it monthly since I read a lot of other blogs and am constantly running across information worth sharing with my readers. 🙂

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      1. That will be good. It will be a great way for your readers to get information. I have been amazed at how diverse and informative so many blogs are.

        I have learned a lot from your blog, Nicole. 😊

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      2. My favorite blogs are diverse, I think it helps them from getting stale so to speak. I’m glad you find my blog informative, that was one of my goals when I started TW! I’m a strong person and I set out to educate myself about my conditions well before I was officially diagnosed. Even my doctors are impressed with how much I know about them. I figured I should use that to help others. 🙂

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      3. Yes, lupus is a mysterious complaint it seems to me. I know more about it now from your blog.

        My rheumatoid arthritis was a mystery in the beginning too. I had really sore feet in the mornings and the pain just got worse. It took a while to get diagnosed. It all seems so long ago, now. You are a gifted poet, Nicole.
        😊

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      4. It is a huge complaint or at least it leads to a good bit of complaining 😛 and there is a bit of mystery to it. I can relate to the soreness in the mornings. My knees and fingers are so sore and stiff most mornings it can take me a while to get started. It’s been a huge adjustment. I use to be one of those people that could hit the ground running in the mornings. Now it takes me a while to get moving, and some days that can mean half a day to get the stiffness worked out. The Plaquenil is starting to make a difference and Rheumatologist added Imuran to treat the rest of what is going on with my Lupus stuffs. Thank you, I have wrote poems for as long as I have been able to write, They are still scattered around my childhood home and throughout my journals I keep laying around at my home. I still have a dream of being a published writer someday. Who knows maybe someday I’ll make that dream a reality. 🙂

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    1. Thanks! I’m also open to other ideas of information that would fit within this concept that might not pertain to just Lupus or Antiphospholipid Syndrome, but still fall under the Chronic Illness spectrum so feel free to send information my way if you think it fits! 🙂

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      1. Will do. I’ll pass on what my endocrinologist told me about autoimmune diseases, when you get one, you’re susceptible to more. For me diabetes then hypothyroidism.

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